Autism

- [ ] use my presentation slides to inform the structure of this MOC note 🆔 KSGQGn #✅️/🟥️ Related to [[Attention deficit hyperactivity disorder]] - <https://coda.io/@mykola-bilokonsky/public-neurodiversity-support-center/how-to-talk-about-autism-respectfully-84> - https://www.cdc.gov/ncbddd/autism/data.html - https://autisticadvocacy.org/ - [ ] https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/437815624 🆔 CWg60D --- [[Autism.canvas|Autism]] related:: [[Psychology]] --- > [!note]- Neurotribes Timeline > ## Neurotribes Timeline > 1869 Edouard Seguin, French physician and educator coins the term “idiot savant” > 1896 Chaskiel Lieb Kanner born in Ukraine > 1906 Hans Asperger born > 1911 Children’s Clinic founded in Vienna by Erwin Lazar > 1921 (Oct) Second International Congress of Eugenics held in New York City > 1923 Kanner emigrates to US, Yankon State Hospital, South Dakota > 1926 Linus Pauling’s mother dies in an asylum from a type of anemia caused by B12 deficiency > 1927 Georg Frankl starts work at Children’s Clinic, becomes Asperger’s chief diagnostician > 1927 Grunia Sukhareva, Russian psychiatrist, wrote about “adolescent psychosis” > 1927 Ole Ivar Lovaas born, near Oslo, Norway > 1928 Bernard Rimland born Cleveland, Ohio > 1930s Kanner sets up Child Behavior Clinic at Harriet Lake Dispensary in Baltimore (Johns Hopkins) > 1930s Anni Weiss, psychologist from Children’s Clinic in Vienna, joins staff at Child Behavior Clinic > 1931 Asperger joins Children’s Clinic > 1937 Louise Despert of Payne Whitney Psychiatric Clinic presents on kids with severed rapport with environment, eventually develops theory into “childhood schizophrenia" > 1937 (Nov) Georg Frankl emigrates to US, joins staff of Child Behavior Clinic > 1938 (Oct) Kanner meets first case of autism (Donald Triplett) > 1938 (Oct 3) Asperger gives first public talk on autism in history at University Hospital > 1939 (Feb) Nazis implement program of killing disabled and low IQ children and adults. More than 200,000 killed in all > 1939 (Apr) 2nd case referred to Kanner > 1939 (May) Bruno Bettelheim emigrates to Chicago > 1941 Linus Pauling cured of Bright’s disease by Thomas Addis’s strict diet of supplements and high water intake > 1943-4 Bettleheim becomes principal of Orthogenic School > 1943 (Jun) Kanner publishes “Autistic Disturbances of Affective Contact” in “The Nervous Child” > 1944 Asperger’s thesis “Autistic Psychopathy in Childhood” is published. > 1944 Kanner coins term “early infantile autism" > 1944 (Sep) Children’s Clinic destroyed in Allied bombing raid > 1946 Chief of psychiatry at NY Bellevue Hospital described 100 children diagnosed with “early onset schizophrenia” now considered classic signs of autism > 1948 (Apr) Time runs article “Frosted Children: Diaper-Age Schizoids" > 1952 DSM-I released, mentions “schizophrenic reaction, childhood type" > 1953 Asperger writes textbook (about autism?) that hasn’t been translated into English > 1953 J. Franklin Robins and Louis J. Vitale describe children with “circumscribed interest patterns” that call to mind Kanner syndrome > 1953 George Frankl describes a “continuum” in autism in a paper that was never published > 1955 Kanner expands diagnosis to “include a number of children who developed normally through the first 18 to 20 months of life" > 1957 Kanner claims he had seen only 150 true cases of autism > 1961 Lovaas publishes “Positive Reinforcement and Behavioral Deficits of Autistic Children” > 1961 National Autistic Society formed in UK by parents of autistic children > 1964 Rimland publishes Infantile Autism: The Syndrome And Its Implications For A Neural Theory Of Behavior > 1964-5? Rimland and Pauling meet at Stanford > 1964-1966 Mary and Campbell Goodwin use a proto-computer device called ERELS with autistic children and have good results > 1964 (Nov 14) Ruth Christ Sullivan, Rimland, and 34 other parents meet at Teaneck, NJ; become National Society for Autistic Children > 1965 Life publishes “Screams, Slaps, and Love,” a profile of Lovaas and his ABA work at UCLA > 1965 Sybil Elgar School founded in Ealing (UK) for educating autistic children > 1966 Oliver Sacks begins work at Bronx Psychiatric Center, meets autistic adults George and Charles Finn and Jose > 1967 Bettleheim publishes The Empty Fortress > 1967 Georgia Society for Autistic Children forms, gets Exceptional Child Act passed by Georgia House (educational rights) > 1967 Benhaven (CT) school for Autistic Children opened by NSAC board member Amy Lettick > 1968 DSM-II released, describes “schizophrenia, childhood type” as “autistic, atypical and withdrawn behavior” and “failure to develop identity separate from the mother’s" > 1969 (July) NSAC First Annual Congress in Washington > 1970 Pauling publishes Vitamin C And The Common Cold > 1970 Lovaas and Richard Green work on Feminine Boy Project, early intervention in gender confusion using behavioral modification techniques > 1970 NSAC Second Congress in San Francisco, first time an autistic person speaks about his experiences at a conference of parents and professionals > 1972 National Autistic Society opens Somerset House, residential facility and school in Europe for autistic adults > 1972 Michael Rutter publishes paper delinking autism and schizophrenia > 1974 Rimland and Mary Coleman release in-depth study of biology of autism concluding it is composed of distinct subtypes > 1974 West Virginia becomes first state to include autism in mandatory public education laws > 1974 Homosexuality is delisted as mental illness in DSM-II’s 7th printing > 1975 Education for All Handicapped Children Act (precursor to IDEA) signed by President Ford > 1977 Michael Rutter and Susan Folstein publish a twin study proving a genetic basis of autism for the first time > 1980s Asperger’s paper translated to English and published for the first time > 1980s? Rimland voted off of board of NSAC, which he helped found, due to his focus on curing autism > 1980 DSM-III includes “infantile autism” described as “pervasive lack of responsiveness to other people” and “resistance to change” and onset before 30 months, also includes Childhood Onset Pervasive Developmental Disorder (COPDD) > 1980 Eric Schopler and TEACCH introduce Child Autism Rating Scale (CARS) first widely available, diagnostic test to distinguish autism from other developmental delays > 1980 Asperger dies > 1981 Lorna Wing publishes a case series called “Asperger’s Syndrome: A Clinical Account” > 1981 Bill, a film about Bill Sacker by Barry Morrow airs > 1982 NBC airs “DPT: Vaccine Roulette” highlighting the risks of vaccines, which wins an Emmy > 1983 Deaner taken off the market by FDA, drug advocated for autistic kids by Rimland > 1984 Residual Autism Newsletter (later MAAP) quarterly newsletter started by Susan Moreno, mother of an autistic girl > 1985 Harris Coulter and Barbara Fisher publish DPT: A Shot In The Dark about Fisher’s son’s symptoms after receiving a vaccine > 1986 Temple Grandin publishes her memoir Emergence > 1987 Lovaas claims that half the children in an experiment group had achieved “normal intellectual and educational functioning” through an immersive program.” These results have not been reproduced independently. > 1987 DSM-III-R published, loosens “autism disorder” criteria, COPDD removed, PDD-NOS added. > 1988 Rain Man released > 1988 Second version of CARS for diagnosing children and adults > 1988-9 Catherine Lord and Michael Rutter introduce Autism Diagnostic Observation Schedule (ADOS) and Autism Diagnostic Interview (ADI) that become gold standard of autism assessment > 1989 Lovaas says in interview that he identified with children who resisted his techniques most, realizing that they were trying to communicate with him > 1989 First mention of Asperger’s Syndrome in an English newspaper > 1990 Coutler publishes Vaccination, Social Violence, and Criminality, proposing autism, homosexuality, obesity, dyslexia, ADHD, drug abuse, spree killings, etc are caused by mandatory vaccines > 1991 Uta Frith publishes paper based on a visit to Children’s Clinic in Vienna in the mid 1930s > 1991 Autism included in Individuals with Disabilities Act as a category of disability, allowing individualized instruction and other services > 1991 Temple Grandin and Oliver Sacks meet > 1992 (Mar) 20/20 broadcasts “The Street Where They Lived” about the Leominster, MA autism cluster > 1992 Donna Williams publishes Nobody Nowhere about being autistic > 1992 Autism Network International (ANI) the first autistic-run organization history launched > 1994 Martin Bax, clinician, publishes article in Developmental Medicine and Child Neurology stating that rates of autism are rising in the Western world > 1994 ANI-L, a mailing list for ANI launched to be a safe space for autistics > 1994 DSM-IV published, adding Asperger’s Syndrome, PDD-NOS criteria has a typo (ORring the categories of symptoms instead of ANDing them) > 1995 Rimland runs headline in his newsletter “Is There An Autism Epidemic?” and answers yes > 1995 Oliver Sacks publishes An Anthropologist On Mars > 1996 (July) First Autreat held at Canandaigua, New York with theme of “Celebrating Autistic Culture" > 1998 Andrew Wakefield publishes a study in The Lancet linking the MMR vaccine with autism causation > 1998 Term “neurodiversity” used first time in Atlantic > 2000 DSM-IV typo in PDD-NOS fixed > 2001 Steve Silberman article in Wired about high autism rates in Silicon Valley > 2003 Kathrin Hipple (University of Vienna) studied case records of Asperger’s patients and found higher number of fathers in technical professions, especially electrical engineering > 2003 Researchers for Archives of Pediatrics of Adolescent Medicine found no association between ASD and the MMR vaccine > 2003 Edelson and Rimland publish Recovering Autistic Children > 2004 Wakefield’s study in The Lancet retracted > 2004 Website Wrong Planet launched by Alex Plank and Dan Grover > 2006 Autistic Self-Advocacy Network (ASAN) founded > 2007 (Sep) Jenny McCarthy publishes Louder Than Words: A Mother’s Journey In Healing Autism > 2010 Wakefield stripped of his medical license > 2011 Wakefield’s study of MMR vaccine denounced as “an elaborate fraud” > 2011 Initiative to offer autism-friendly versions of Broadway shows > 2013 DSM-5 published: PDD-NOS; Asperger’s Syndrome; autistic disorder folded into “autism spectrum disorder” (ASD) > 2013 Computer software company SAP announces goal of hiring 650 autistic people, ~1% of its workforce, by 2020 > 2015 researchers at University of Edinburgh find that genes associated with autism are associated with higher levels of cognitive ability, particularly problem solving --- [[Autistic Meltdown Coping Strategies]] [[Developmental delays associated with autism may stem from the necessity of the autistic individual to develop their own social and emotional coping skills from scratch]] [[Auditory Frisson]] [[Neurodivergent brains like those with ADHD mask to fit in better amongst neurotypicals but this is exhausting]] [[Masking]] [[Stigma Against Labels can adversely affect the quality of life available to disabled children with autism whose parents may also see through a lens of undiagnosed autism]] [[The Double Empathy Problem]] [[The importance of avoiding functioning labels in regards to autism]] [[Aspergers]] ## Reasons to Not Pursue A Formal Diagnosis - Potential to be denied gender affirming care - Barred from emigration to countries like New Zealand and Australia (if your support needs exceed the cost barrier) - Can also apply to refugees fleeing a national crisis - Abusive guardians can more readily acquire conservatorship and/or guardianship over you - Can hurt your chances in custody battles - Discrimination (that you cannot combat unless you have the resources to do so) - Autistic people were denied ventilators and given DNR orders without their consent during the height of the covid pandemic - Denial of organ transplants ## to incorporate into notes ![[neurodivergent sensory overwhelm example.mp4]] ![[Autistic Larger Tonic Pupil Size AQNqRYA0YRQnqMnsLL1usdJL4BIuQRRoT0bFPjf3yhbynI3ejEwn7NsWgK_rMFQOeW2QetPylbA7zPHM0rrgpJ8s.mp4]] ![[maria.mp4]] ![[; 2024-11-24 The ActuallyAutistic Guide to Advocacy#^103b23]] ![[; 2024-11-24 The ActuallyAutistic Guide to Advocacy#^662e18]]